EPEC is a support group for parents of children with special needs, disabilities, learning differences, or developmental delays. 

The purpose of EPEC is to create a safe space for parents to discuss their experiences, share ideas, and provide spiritual, mental, and emotional support to one another. EPEC is a judgment-free space, and a ministry of Christ Church Charlotte. Group meetings will include opportunities for learning, sharing, and will feature guest speakers and professionals from our local community. Childcare is available with advance registration. Please click the link (left or below) to request childcare. 

If your church or community is interested in starting an EPEC* Support Group please contact The Reverend Matt Holcombe for more information. 

Blessed are the meek, for they will inherit the earth. - Matthew 5:5

 

Anderson with Drs. Koolen & deVries

The Holcombes' Story:  When Anderson was three months old he was diagnosed with Congenital Nystagmus, a vision condition that causes significant developmental delays. We were told by the doctors, “Anderson may never walk or talk, and he might be blind.” We were devastated. After going through a season of grieving and countless doctor visits, we began the long process of learning new patterns and understanding why God chose us to be his parents. For the first two years of Anderson’s life he had 11 therapy sessions per week and lots of encouragement from his big sister. His development was delayed and additional diagnoses of Ehlers Danlos Syndrome and ADHD were made. However, it wasn’t until Anderson was seven years old that he was genetically diagnosed with Koolen-deVries Syndrome and all the pieces came together. A rare genetic mutation on chromosome 17 placed him in a small group with roughly 400 other children and adults in the world. We have come to appreciate and give thanks to God for the gift that Anderson is in our life, but it hasn’t been without struggles. We often found it difficult to talk openly about what we were going through and experiencing emotionally, mentally, and spiritually. In July 2017, while attending a genetic conference for Koolen-deVries patients, the encouragement for EPEC was born.  [Photo: Anderson with Dr. Koolen and Dr. deVries]